Jennifer Updates
(Mostly taken from e-mails sent by Sally)
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- August 9, 2008 9:09 AM PDT
Hello Eastgaters,
Most of you are up to date on the progress of Jennifer and her liver
transplant. This is a short note to say that a week ago she was told
she didn't have to report to the transplant clinic for two weeks.
That is really progress. She still gets her blood drawn 2/week for
those counts and seems to be holding her own on that. Meds get tweaked
at these times also. She is still addressing another issue, but the
Liver and Jennifer seem to be in harmony. I think we all know that
getting out in crowds (i.e. church) is not something she should yet
be doing. It will be a joyous moment when she can and does. . If you
want to see a good picture, go to the website at http://www.mindspring.com/~eastgateucc/index.html
, to Jennifer's Updates and click on that. She also has written a
letter to the Cleveland Global Ministries that is listed there with
some more information in her own words. David Coatsworth who works
in that Ministry hand delivered a card signed by many in the Cleveland
office and this is a note to them. It was an awesome gift to have
David deliver that with the concerns and love from the Cleveland Folks.
So keep those prayers coming for healing and further health, support
for the family and praises for a "job well done". Also be
mindful of the family who lost someone in order to let someone else
live.
Faithfully
Sally
"Through all the turmult and strife, I hear the music ringing:
It finds an echo in my soul, How can I keep from singing". (Robert
Lowry/Ira Sankey 1860.)
"I will sing praises unto my God while I have any being."
Psalm 146:2
So keep on Singing and Praying.

- August 5, 2008 From Jennifer herself!
Dear Cleveland Staffers, (Please feel free to forward onto other card
signers),
When Rick came home from church on Sunday and presented me with the
card from all of you I was very moved. Auspiciously, I was wearing
my GM t-shirt Linda had given me at Synod as you will see in the attached
picture! You may have seen an earlier picture with me all tubed-up
on the eastgateucc.org web site a couple of days post-surgery. Big
changes. My recovery has been aided by a cast of thousands including
Shawnee and Zoe who are here with us as they reintegrate into life
in the USA.
These past two weeks have been unlike anything I could have ever imagined.
Of course, my imagining/thinking skills were not primo the last few
months. Shawnee told me of Skyping me from China a month or two ago.
She had told me about a man named Nathaneal who had been a teenager
with the small mission group I had taken to India in '92. I had asked
her who Nathanel was. A question I would not ask today as my memory
of this young man is still so fresh despite him now being a doctor
and a married man for ten years! When she told me about this conversation
this weekend I realized how much greater the impact of the end stage
liver disease had been. (And this was with taking lactulose-the ammonia
removing drug universally disliked by all patients for its side affects).
In a short while I will be heading off to the support group for post
and pre-transplant folks. I will wear my mask and "gel in and
gel out." It will be a month or more before I can venture into
wider groups like church services. One of the things I will say to
the transplant group is how blessed I have been with an incredible
support system with people like you, church folk from Texas, NH, Maine,
Ohio, Washington, Illinois, etc plus of, course, Eastgate Congregational
UCC. In addition there are so many others around this global community,
many of whom know me only through a friend or family member. Since
Seattle is home I have an embarrassment of riches in a loving family
who have been there in so many ways.
With the transplant have come some changes. The leg and hand cramps
are gone. The ice cube consumption, once a true habit, is non-existent.
The last few months the exhilarating campaign of Barack Obama and
the alternate multi-verse of Star Trek have been my home. What I have
inherited is a tendency to cry easily, something totally new. Probably
not unexpected when one contemplates the meaning of the gift of life.
I'm told my color and jokes are better. I'm back giving commands and
have even got Zoe trained on doing the twice daily blood pressure
checks!
What I have also noticed is a re-awakening of the sense of the Holy.
A true blessing. There is also a deep sense of love for Rick, my partner
for almost 39 years, through all of this.
God is good.
All the time.
Jennifer

- Sunday, July 27, 2008 9:56 PM PDT
Okay..if you were not at church, then you missed the big announcement
'Jennifer is coming home today". Her surgery was last Sunday.
Home today at about 6PM. Settling in. I think you can all imagine
what that could mean, after this past intense week. So think of them
on that subject.
They thank you for all your care, prayers and concern. AND CARDS.
According to Shawnee, Jennifer likes getting cards, so if any of you
have a tidbit or two to share with her, go ahead and do that. Maybe
we will have her write a book. :-) !!
Seriously she is still very much on the mending side of this liver
transplant. The Physical Therapist whipped her though walking and
some exercises and made sure she could move about at home...as a good
PT should do. "whip em into shape". The pharmcist went through
the variety of meds that she must take which seems overwhelming, but
will dwindle as the months go by. Jennifer is on a strict eating regime
with rules about just about everything so we need to be aware of that
and honor it.
Pray for contining and sustaining health for Jennifer and God's support
for Rick and the family as they too learn to live with this new liver
of Jennifer's. Praises for the liver, the expertise and watchfulness
of the surgeons and the care of the nursing staff. Prayers of comfort
for the family of the donor also.
More as it comes.
Blessings,
sally
Every time I feel the Spirit moving in my heart
I will pray...oh yes, everytime I feel the Spirit moving in my heart
I will pray.
- Tuesday, July 22, 2008 12:26 PM PDT
Hello People,
Day two after Jennifer's marathon surgery. Early yesterday that ventilator
came out of her throat and her first word was "hallelujah".
Can't beat that. Rick reports that she has been joking with the medical
staff ever since. She was sitting up by yesterday afternoon and has
had some of the tubes removed. ( I am not sure how many were there
and if there are any left, but each one removed is progress).
Today, she is sitting up, talking more, crunching ice chips and anticipating
going "downstairs" to the regular transplant patient floor.
I did get to talk to her on the phone and that was overwhelming for
me. She sounds good, Rick was there, the family has been there throughout
this event. This is a loving loyal family and they surround Jennifer
with love and care.
I would guess that updates from now on will be only if there is a
change or when she comes home or I get "a notion". Along
with the Russell family I am so grateful for the prayers and words
of concern and support from all of you. It has been "a trip"
of wild proportions. We pray now for the liver and Jennifer to live
well together. There of course, is still a road to travel, and we
are praying for it to be a calm journey of successes.
So that is it for this part of this day.
Peace and Blessing to each of you.
Sally
"Even though on the outside it often looks like things are
falling apart on us, on the inside, where God is making new life,
not a day goes by without God's unfolding grace." 2 Cor. 4:16
from The Message. God is good. Thanks be to God.

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Monday, July 21, 2008 11:06 AM PDT
Good morning, bring on the sun. Briefly..since the day is really
only half started...Jennifer had a good night, the ventilator is
out already (that is a plus), she is talking, family is with her,
she is also trying to recapture yesterday and asking questions,
and right now the going is good. I will probably have more as the
day goes..but I know that you are all wanting some info. And this
is such good stuff. I just praise her stamina, the family's love
and support for each other, the surgeons' concern, care and expertise
and I will include the ICU staff too...they are tops.
More later,
Thankfully and gratefully,
sally
- Sunday, July 20, 2008 9:09 PM PDT
Okay here is what I have now at 9PM. Jennifer is in ICU having been
in surgery about 11 hours. THAT IS ELEVEN HOURS!. All I can say is
wow. She is resting, doped up, able to respond to the nurse's inquiries
by squeezing fingers...so that is all good. She has been given a lot
of blood and had a great deal of fluid in her abdominal cavity which
they did deal with as they would. Her BP is good which is a positive
and the professional people around her seemed quite upbeat about the
outcomes to date. She is also on a ventilator. As she wakes up and
processes more and breathing on her own comfortably that will come
out. (those things are uncomfortable and you can't talk ..so it is
an irritant too later on--my editorial)
Rick is ready for a good night's rest and I imagine the girls are
too and sister Sharon ..all of whom were with Rick most of the day.
(another editorial...I called Sharon a half sister in one of these
updates and I truly apologize to her, gracious she is a full sister.)
All in all we are all grateful and thankful that this so far as been
successful. Prayers again for the donor's family.
Prayers for continuing recovery in good sted for Jennifer.
Blessings to each of you,
This has been one long day for the Russells.
Take good care,
sally

- Sunday, July 20, 2008 3:00 PM PDT
For those of you who are wondering about the progress of Jennifer's,
here is a short update. As of about 2:45PM, Jennifer was still in
surgery but holding up well, the liver is in, some oozing is being
monitored and there is about 60-90 more minutes of this part of the
process if all goes well. Rick is sitting with Robin, Kelly and Jennifer's
halfsister, Sharon. Shawnee is taking Zoe over to PF...but was there
all morning. Rick sounded very tired this morning and still is...but
he did sound livlier this time.
Next report will be after this surgery marathon is finished and hopefully
she is in ICU.
They feel blessed and surrounded by caring, loving, praying folks.
Take good care,
sally
- Sunday, July 20, 2008 8:46 AM PDT
Okay...this is a go. Jennifer is IN surgery now...about 8:30AM. I
will get updates later. My gosh folks, this is more than I can get
my head around.
Pray for success and strength.
Take good care,
Blessings
sally

- July 17, 2008, 10:57 AM, PDT
Hi Folks,
Time for the latest on Jennifer's week.
Basically it has been a good week. Her hematocrit was a bit low but
they weren't going to transfuse yet.
However, yesterday (Wed.) at 10:00AM Rick and Jennifer were called
to UHMC and off they went to wait another prospective liver. They
spent all day there, Jennifer was fully tested and prepped and they
waited. The liver was to come in around 7-9PM and it did. During the
day J. was made the number one recipient of this liver if all the
vital "stuff" matched her. The doctors would be doing a
look see at this liver, compare it to J's needs and then if all went
well do the surgery probably around 10:00PM. (times are not exact)
And as Rick says it..I think they "were at the door of the surgery
room" when the surgeon came in to tell them that the liver was
not going to be transplanted. It seems that it wasn't looking as healthy
as they thought. So off the Russells went to home.
This had to be a great disappointment for both Jennifer and Rick.
On one hand they wait and anticipate and on the other the surgeon
is watching out of Jennifer. They do learn more and more about this
process as they happen to move through them. It is heartening that
the transplant surgical team is alert, aware and proactive, imo.
I expect that prayers for Jennifer and Rick would be for continued
faith, patience and understanding, for the supportive family to keep
on being strong in that too and for this liver to present itself soon
in good non risky condition. Prayers too for the surgeons who are
in charge of this eventual surgery and the care they give to J.. And
of course, prayers for the donor whoever she/he might be, that God
hold that one close also.
Blessings to each of you.
sally

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July 12, 2008, 9:07 AM, PDT
Hi Folks,
This is just a brief update for those who are asking and wondering.
Rick tells me that it has been a good week. Jennifer is getting
exercise, taking her meds like she needs, going about other activities
and is generally stable medically. No trip to the hospital in two
weeks. And that is good news.
Jennifer remains #4 on the list of liver recipients. The issue now
is THAT telephone call. They wait for it to ring and have it be
the the UHMC transplant folks. Not yet..but stay tuned. It must
be hard to anticipate and then have it not be...yet, but with the
support of all of you and their family, the Russells are coping.
Any more questions just ask. Send an email, see me at church, use
the phone...I am willing and able.
And without any other news...we may see Jennifer in church.
The weather is good, Jennifer is stable, God is good.
Take care and Blessings to each of you.
sally

- July 5, 2008, 6:02 AM, PDT
Hi again everybody,
Rick wrote in the night to tell us that they were on there way home.
The liver was from a very tall man and it was too big for Jennifer.
So as disappointing as this is for them, it was closer to 'being'
and they learn more about the process each time.
Thank you for caring, for your concern, keep the prayers coming.
This up and down teeter totter has to be tough on Jennifer and Rick.
Blessings to each of you,
sally

• Happy July 4th Folks,
This is a quick message on Jennifer. As of yesterday her hematocrit
was 26 down one, her MELD was 22 up one. She had a busy Saturday last
with the two events she attended. It was good to see her participating.
Rick said she was off the other day shopping at a mall..so keeping
up spirits and physical abilities. She has to be accompanied and tires
easily..but WAY TO GO JENNIFER. And of course having Shawnee and Zoe
home is a good thing too. Rick's brothers are here and sister Margaret
comes in tomorrow, so lots of support there, along with the family
that lives in this area.
NOW for today's news. Jennifer was admitted to UWMC today at noon
to be the "backup" for a liver that will become available
sometime in the close future. At 7:30PM she has been thoroughly prepped
with all the various tests that she has to undergo before she can
have the surgery, been advised with all the information for a transplant
by the surgeons and now must wait. This liver may or may not be for
her, but if it is, it will be good.
Prayers for health, strength and comfort for Jennifer and Rick and
the family. And for the donor.
Stay tuned. More as soon as they know and let me know. Rick has been
very good on this.
Blessings to each of you.
More to come as it happens....or not.
Prayerfully,
sally

- June 22, 2008—It was a joy to see Jennifer in church
this morning.

• June 19, 2008—Currently, Jennifer is stable and at home.
She is conserving energy, getting some physical exercise to maintain
strength, taking her meds (one of which she says is very yukky tasting)
and keeping her mental spirits positive. Earlier this month, she spent
a week in the hospital getting a “tune up” (her term) to
make sure that she is well enough to undergo transplant surgery when
a good compatible liver becomes available. No trips to the emergency
room last weekend or so far this week...and that is cause for celebration.
Many of you may know that last weekend Jennifer was called to be at
the hospital in the morning to receive a transplant. As things progressed
through the morning, and with much consultation with the surgeons, Jennifer
declined that liver. A later biopsy on the donor liver revealed that
it was unacceptable for anybody, so Jennifer's decision was a sound
one.
Rick says J's spirits are good and for that we can be grateful. Now
the job is to take the meds, keep her strength up and wait. She continues
to be number 4 on the list at the University of Washington Medical Center...that,
too, is good.
Prayers for Jennifer to remain stablized with all these MELD scores
and that when another liver is available that it "fits". Both
Jennifer and Rick are very appreciative of the prayers, cards, concern
and support that you are so willingly offering and giving.
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